The Patients and Parents Group (PPG) within the FOSTER Consortium plays a vital role in ensuring that the voices of patients and their families are central to the consortium’s research, decision-making, and advocacy efforts. Comprising individuals with firsthand experience of the conditions being studied, the group brings valuable insights into the challenges, needs, and priorities of those directly affected by osteosarcoma.

As an integral part of the FOSTER Consortium, the PPG collaborates with researchers, clinicians, and policymakers to shape research objectives, enhance patient-centered care, and drive meaningful engagement in scientific advancements.

The group contributes by:

1. Advising on research priorities – ensuring studies align with the real-life concerns and needs of patients and families.
2. Providing a patient perspective – offering insights into daily challenges, treatment expectations, and quality of life considerations.
3. Enhancing communication – facilitating dialogue between researchers, clinicians, and the patient community.
4. Raising awareness and advocacy – promoting education, outreach, and policy changes that benefit patients.
5. Co-developing resources – assisting in the creation of accessible information and support tools for patients and families.

By fostering an inclusive and collaborative environment, the Patients and Parents Group strengthens the impact of the FOSTER Consortium’s work, ensuring that scientific progress translates into meaningful benefits for those who need it most.